Katelyn's Journey: Crazy Week so Far but Im Finally Done

Wednesday, August 6, 2008

Crazy Week so Far but Im Finally Done

Today was my last day of the day program rehab in Sacramento!!!!!!!!

I'm finally done and ready to have my 4 day summer! Although still in rehab this past week i have done some fun things! On Tuesday my friend Victoria and i got our ears pierced! Well she got her first and i got my second on my right ear!!! It was so exhilarating! On Wednesday i got my haircut!! It came out really cute!

We have been talking to the school about what we're going to do so please pray for that!!! I am starting soon so im alittle nervous. I just found out that i am going to be having an aid to help at school. They said that she will mostly be helping me to and from class but the district requires it. I am sure that i will be better soon so i wont need one...but for now i hope shes nice. I also did find out what classes im taking and im really happy with what i got. i wont say what classes i have because everyone doesnt have theirs yet and i dont want to be rude.

BYE

4 comments:

Anonymous said...: Thats awesome Kate!!! I can't wait to see you in school and I hope we get some classes together this year. I'm praying for you that your aid will be nice, which I'm sure she will. I can't wait to see you and keep up the amazing work. You're such an inspiration.
Love, Renee<3; August 6, 2008 at 7:34 PM
Anonymous said...: Hey Katelyn!

Your double piercing looks really cool, and I can't wait to see your new haircut! I'll be praying you get a super awesome aid! :)

Your friend,
Asia; August 6, 2008 at 8:10 PM
2girls2love said...: Katelyn,

What a JOY to see the genuine smile on your face, and to continue to see how you are allowing God to fill you again with His joy. I love checking your blog and watching and praying with you all.

I can't imagine the intensity of emotions and thoughts that have filled your life these past months. But we stand with you and your family in prayer and faith.

give our love to all,
Because of Jesus,
Pam Hembree and gang; August 6, 2008 at 9:39 PM
Anonymous said...: Hi Katleyn!
I hope you enjoy your 4 day summer! I love your double peircing!!! I am also glad your haircut came out cute! I can't wait to see it! I will pray that your aid will be nice! I also want to here what your classes are! I love to see how God fills your heart with joy! I'll keep you in my prayers!
Love,
Allison =); August 7, 2008 at 7:34 PM

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How it all began...

In Febrary, Katelyn first developed a severe unknown allergic reaction that caused her eyes to be swollen shut for over a week with orbital cellulitus and her whole body to itch. She was on high doses of antibiotics and steriods to clear up this contidition.

Next, in April she came down with a very bad flu virus that caused her to loose a lot of weight in a short amount of time. Katelyn ended up in the hospital due to dehydration and the inability to keep any food or liquids down. She underwent many tests and evaluations. At one point, she had lost more than 15 pounds. After 3-4 days of testing, it was finally determined that she had SMA syndrome, which is a small intestinal blockage. A feeding tube needed to be placed past the blockage before they could begin tube feedings.

Unfortunately, there were many complications involved in this process. They had to do feedings through her IV until the tube moved to the right location and multiple times they had to move her IV as her veins kept giving out. Eventually, they got the ND tube placed and after 2 weeks in the hospital we got to go home on home feedings until the blockage cleared and she could begin eating on her own again.

We started having complications almost immediately after going home. Her system struggled with the change in formula we went home on and the change in medications. Also, her feeding tube became clogged and required a trip back to UC Davis to have it cleared. After only 4 days, we were back in ER as her GI system developed complications. We were released for home treatment but the next week ahead brought further problems.

The following weekend, we were back at the ER due to the tube being clogged again (apparantly this isn't unusual). This time they brought in the Intervention Radiology team to pull the old tube and replace it with a new one. They choose to sudate her for the procedure this time. Again, there were complications arising from the medications and when she finally pulled out of the sedation she had lost all her muscle control. Her body had finally been through one too many traumas and shut down.

Katelyn was admitted again and we spent the next 2 1/2 weeks in the hospital in the rehab program. The one success while we were there was that she slowly began eating and the feeding tube was finally removed and done with.

Katelyn was released on May 29th in time to attend her 8th grade Graduation the following day. She was still completely dependant with no muscle control but she wanted to attend her graduation anyways. Strapped into her wheelchair, she wore a huge smile and accepeted her diploma.

Katelyn is now home and with the aid of a hospital bed downstairs, we are able to care for her here. She continues to have rehab therapy locally with a therapist she likes and has worked with in the past. Her progress is slow but the prognosis is for full recovery but it could be weeks or months, they just don't know.

Katelyn's Journey

Wednesday, August 6, 2008

Crazy Week so Far but Im Finally Done

4 comments:

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