Katelyn's Journey: A week of.....

Wednesday, August 20, 2008

A week of.....

So, since i last wrote a lot has happened. I am starting to get into school and get into a routine. I am still enjoying my classes even though they are starting to load on homework, I am still having time to watch some of the Olympics..GO Nastia Liukin!! I have kinda had a hard week with school and my legs and Ive been feeling sick. I have been trying to be happy but it is sometimes hard when you feel like junk. I am having a hard time right now and i am frustrated with my body. I realize that it is in Gods timing when i will be healed but i wish it would hurry up. I also want people to understand that i have NO control over when it returns it could be a week or a year. I just want to be a normal teenage kid again, IT IS HARD......

On a lighter note i am having a wonderful time in my classes and loving them all!!!!

I hope everyone who started school this week had a Great first week!!
God bless You all!!

Katelyn

2 comments:

2girls2love said...: Sweet Katelyn,

Jesus knows every desire of your heart and I pray that He will make His daily presence known to you as you wait for Him to fulfill His promises to you in His time ...
It is so lovely to watch you look for His blessings in the midst of your struggles and I know your words bring joy to His heart and valuable learning to ours.

love to you and prayers too,
because of Jesus,
Pam Hembree and gang; August 21, 2008 at 10:54 PM
Cindy said...: Katelyn,
Sorry that you have been feeling bad, hope that it is easing up for you and that your tummy quit hurting.
It was so great to spend time with you. You are such a beautiful bright spot on this earth with such a tender heart. God knew exactly what he was doing when he created you, and has such a great plan to heal you. I know it's hard to be patient...
I love you - be gentle on yourself! God Bless You!
Cindy; August 25, 2008 at 10:13 PM

Post a Comment

How it all began...

In Febrary, Katelyn first developed a severe unknown allergic reaction that caused her eyes to be swollen shut for over a week with orbital cellulitus and her whole body to itch. She was on high doses of antibiotics and steriods to clear up this contidition.

Next, in April she came down with a very bad flu virus that caused her to loose a lot of weight in a short amount of time. Katelyn ended up in the hospital due to dehydration and the inability to keep any food or liquids down. She underwent many tests and evaluations. At one point, she had lost more than 15 pounds. After 3-4 days of testing, it was finally determined that she had SMA syndrome, which is a small intestinal blockage. A feeding tube needed to be placed past the blockage before they could begin tube feedings.

Unfortunately, there were many complications involved in this process. They had to do feedings through her IV until the tube moved to the right location and multiple times they had to move her IV as her veins kept giving out. Eventually, they got the ND tube placed and after 2 weeks in the hospital we got to go home on home feedings until the blockage cleared and she could begin eating on her own again.

We started having complications almost immediately after going home. Her system struggled with the change in formula we went home on and the change in medications. Also, her feeding tube became clogged and required a trip back to UC Davis to have it cleared. After only 4 days, we were back in ER as her GI system developed complications. We were released for home treatment but the next week ahead brought further problems.

The following weekend, we were back at the ER due to the tube being clogged again (apparantly this isn't unusual). This time they brought in the Intervention Radiology team to pull the old tube and replace it with a new one. They choose to sudate her for the procedure this time. Again, there were complications arising from the medications and when she finally pulled out of the sedation she had lost all her muscle control. Her body had finally been through one too many traumas and shut down.

Katelyn was admitted again and we spent the next 2 1/2 weeks in the hospital in the rehab program. The one success while we were there was that she slowly began eating and the feeding tube was finally removed and done with.

Katelyn was released on May 29th in time to attend her 8th grade Graduation the following day. She was still completely dependant with no muscle control but she wanted to attend her graduation anyways. Strapped into her wheelchair, she wore a huge smile and accepeted her diploma.

Katelyn is now home and with the aid of a hospital bed downstairs, we are able to care for her here. She continues to have rehab therapy locally with a therapist she likes and has worked with in the past. Her progress is slow but the prognosis is for full recovery but it could be weeks or months, they just don't know.

Katelyn's Journey

Wednesday, August 20, 2008

A week of.....

2 comments:

About Me

How it all began...

Blog Archive

music comes from the soul..........