Katelyn's Journey: Monday Morning Change in Plans

Monday, July 14, 2008

Monday Morning Change in Plans

Kate isn’t going home yet, but being transferred to another unit. They found another specialist who is familiar in this condition and he is going oversee her new medications and wants to keep her in to evaluate her closer. Praise God, that the right people are getting on board to get her the help she needs!

5 comments:

Loco Laurena said...: Hi Katelyn! I dont know if you'll get this but this is Lauren Wadsworth from GAB. I miss you sooo much and I really hope that you get better soon! I will keep you in my prayers!; July 14, 2008 at 12:28 PM
the blog according to Libby said...: Katelyn! trent and I are praying for you! He is especially excited to come and visit and pray with you when you are up to it! We love you

Trent and Libby Vincent; July 14, 2008 at 1:13 PM
Steph Z said...: Hey Katelyn:) it's Stephanie Zaffree, I hope you get better and are able to go home soon!You are such a Great friend, I really miss you! I am praying for you everyday. Love you!; July 14, 2008 at 1:32 PM
Cherie Denna said...: Jeannette & Robert ~
As a parent, this must be unbearable at times. Praise God he has his arms wrapped around you and your little angel through this. I am praying for all of you, in so many ways, for so many things. Most of all, I pray for your strength and faith in the Lord as we pray for God to send his angels to Katelyn's bedside. You know he works miracles every single day! I pray for Katelyn's pain to cease, in Jesus'name! You are so loved. The unknown can torment us, I know, but remember, "He gives wisdom to the wise and knowledge to the discerning. He reveals deep and hidden things; he knows what lies in the darkness, and light dwells with him.....you have made known to me what we asked of you.." (Daniel 2:21-23)

Bless you Katelyn and hold on tight to the hem of Jesus' garment.

My Love ~ God's Light ~
Cherie LaLanne; July 14, 2008 at 1:50 PM
kat.krazy said...: Hello Katelyn,
We send our love and prayers. One of my favorite scriptures is from Isaiah 40:28-31 "Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall, but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isn't it comforting to know that our God never grows weary or tired of taking care of us? And that we are strong in His power? Keep your hope in God, Katelyn. He will strengthen you in His power. With lots of love, the Tucker family; July 14, 2008 at 2:45 PM

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How it all began...

In Febrary, Katelyn first developed a severe unknown allergic reaction that caused her eyes to be swollen shut for over a week with orbital cellulitus and her whole body to itch. She was on high doses of antibiotics and steriods to clear up this contidition.

Next, in April she came down with a very bad flu virus that caused her to loose a lot of weight in a short amount of time. Katelyn ended up in the hospital due to dehydration and the inability to keep any food or liquids down. She underwent many tests and evaluations. At one point, she had lost more than 15 pounds. After 3-4 days of testing, it was finally determined that she had SMA syndrome, which is a small intestinal blockage. A feeding tube needed to be placed past the blockage before they could begin tube feedings.

Unfortunately, there were many complications involved in this process. They had to do feedings through her IV until the tube moved to the right location and multiple times they had to move her IV as her veins kept giving out. Eventually, they got the ND tube placed and after 2 weeks in the hospital we got to go home on home feedings until the blockage cleared and she could begin eating on her own again.

We started having complications almost immediately after going home. Her system struggled with the change in formula we went home on and the change in medications. Also, her feeding tube became clogged and required a trip back to UC Davis to have it cleared. After only 4 days, we were back in ER as her GI system developed complications. We were released for home treatment but the next week ahead brought further problems.

The following weekend, we were back at the ER due to the tube being clogged again (apparantly this isn't unusual). This time they brought in the Intervention Radiology team to pull the old tube and replace it with a new one. They choose to sudate her for the procedure this time. Again, there were complications arising from the medications and when she finally pulled out of the sedation she had lost all her muscle control. Her body had finally been through one too many traumas and shut down.

Katelyn was admitted again and we spent the next 2 1/2 weeks in the hospital in the rehab program. The one success while we were there was that she slowly began eating and the feeding tube was finally removed and done with.

Katelyn was released on May 29th in time to attend her 8th grade Graduation the following day. She was still completely dependant with no muscle control but she wanted to attend her graduation anyways. Strapped into her wheelchair, she wore a huge smile and accepeted her diploma.

Katelyn is now home and with the aid of a hospital bed downstairs, we are able to care for her here. She continues to have rehab therapy locally with a therapist she likes and has worked with in the past. Her progress is slow but the prognosis is for full recovery but it could be weeks or months, they just don't know.

Katelyn's Journey

Monday, July 14, 2008

Monday Morning Change in Plans

5 comments:

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